About Us

In February 2021, our daughter was diagnosed with a rare genetic condition known as KBG Syndrome. If you Google it like we did, you probably won’t come up with much since the number of cases is < 1,000 worldwide. Holy smokes. In the 7+ years we’ve been in the parenting game, this scenario had not surfaced once in all of the blogs, newsletters, etc. flooding our inbox. As not just a couple of parents who know a little about something most know little about, but marketing and tech professionals with a bias for action, we craved more peeks behind the curtain. Being open about our personal situation wasn’t a comfortable decision, but one that felt necessary. As we navigate how KBG is being defined for us by our beautiful daughter and the complexities to bear (e.g. raising two other kidlets and an adorable pup, a lingering global pandemic, a relatively new zip code, etc.), we felt if anything here could help even one family in some way – it would all have been worth it.

We know firsthand how stressful, emotional, and heavy the circumstances can feel at times. We also know that KBG is not a one size fits all. That in mind, our goal is pretty simple: raise KBG awareness, share aspects of ours and hopefully others’ experience, and spread love – that’s the kidlets way.