Resource mapping.

New Jersey

CHOP at Princeton University

1 Plainsboro Rd
Plainsboro Township, NJ 08536

a beautiful facility offering a range of specialities. due to some reported issues with eyesight by some children with KBG, kidlet sees her wonderful doctor in ophthalmology for annual check-ups.

Children’s Specialized Hospital Therapy

@childrensspecnj

375 Mt Pleasant Ave Suite G100
West Orange, NJ 07052

what used to feel almost like a second home is no longer as frequented by kidlet. speech, feeding, OT, and PT were once a regular occurrence. such a great group of kind, invested therapists.

Rocking Horse Rehab

@rockinghorserehab

256 S Maple Ave
Basking Ridge, NJ 07920

where kidlet gets to spend time getting stronger with the help of her fave four-legged friends. variety of therapy offered, including OT, PT, and of course hippotherapy.

Hammer Surf School

@hammersurfschool

Beach @ Spring Lake, NJ

some added thrill to the warmer weather months. our kidlet loved surf therapy and Sam & team are more than ready to accommodate different needs. park it for a beautiful day at the beach.

Intensive Therapeutics

@intensive_therapeutics

31 Fairfield Ave
West Caldwell, NJ 07006

why go to therapy alone when you can do it amongst friends? Intensive Therapeutics offers a range of services to kidlets with different needs. our kidlet can vouch for Summer Camp Helping Hands.

New York

Dr. Sharon Oberfield

1 W 51st St
New York, NY 10019

Dr. Sharon Oberfield, a seasoned endocrinologist who is exceptionally thorough, seasoned, and keeps up on KBG research developments.

Pennsylvania

Children’s Hospital of Philadelphia (CHOP)

@childrensphila

3500 Civic Center Blvd
Philadelphia, PA 19104


kidlet goes to the Epilepsy Neurogenetics Initiative Team (ENGIN) clinic. well worth the drive, she sees the most caring, experienced specialists who treat children with genetic epilepsies. 

Hawaii

Surf Clinics of Maui

@surfclinicsofmaui

specializing in inclusive surfing, donation-based Surf Clinics of Maui is located in Kihei, Hawaii. the perfect complement to your Hawaiian vacation or regular therapy regimen if you’re lucky enough to live in proximity! surf, smile, strength, repeat.